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Define minimum clinical data fields for inclusion? #7

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kcranston opened this issue Mar 7, 2024 · 1 comment
Open

Define minimum clinical data fields for inclusion? #7

kcranston opened this issue Mar 7, 2024 · 1 comment

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@kcranston
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The v1.1 MOHCCN Gold Cohort policy, pdf here: version 1.1, defines a minimum amount of clinical data for inclusion of a case. The text reads:

"The minimum clinical data for inclusion of a case for the “Gold Cohort” is basic
demographic, diagnostic, high-level stage, basic prior treatment, and sample registration fields".

I am not sure if this inclusion criteria is being used at any point in the data pipeline yet. Will this be something that happens upstream of CanDIG, or will we want a check as part of ingest?

Does the CDS group need to come up with a list of what fields constitute the minimum data for inclusion?

@lstein
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lstein commented Feb 5, 2025

DISCUSSION (5 Feb 2025): Hard at the current time to define what the minimum clinical data is, because this depends on the proposed analysis. Suggestion is to develop completeness statistics after several rounds of submissions and then evaluate retrospectively.

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